Who Is…a Spoonie?

When I first heard anyone refer to themselves as a spoonie, I was, needless to say, confused. I thought of spoons as tools to use for eating a lot of our food, not for something we called ourselves.

I would learn later on that the people who called themselves spoonies were people whose experiences with chronic illness (whether physical or mental) could be described with this thing called spoon theory.

But what is spoon theory?

Spoon theory, a term first coined by Christine Miserandino when describing her experience with lupus, is a shorthand for describing how, because of someone’s illness or disability, they have a very limited amount of physical and/or mental energy to do tasks throughout the day (in other words, a very limited number “spoons”) before they are just unable to do any more tasks.[1] For example, let’s say that you have only twelve spoons for the day based on how you feel and how much energy you have, and driving to and from work is three spoons, cooking for the family is four spoons, and work itself is three spoons. That leaves you with only two spoons, and that’s before we’ve even gotten to hygiene, housecleaning, taking care of any pets, laundry, or any other of the basic day-to-day tasks that many of us may take for granted (before we even get to socializing with friends or anything like that).

This shorthand spoon theory is supposed to help people who don’t have that shared spoonie experience (like me) understand that people with many illnesses have limited energy to do the tasks they need to do, let alone the tasks they’d like to do. Through having that understanding of spoon theory and the experiences of spoonies, some of us, particularly those of us who (like me) don’t have that shared experience of living with a chronic illness or other disability, can become more understanding of our friends and family members who do have a variety of illnesses or disabilities. Learning about spoon theory has certainly helped me become more understanding of friends whose day-to-day experiences with various illnesses or disabilities could be described with spoon theory.

All that being said, I would be interested in hearing from any friends or other readers who have experiences with various chronic illnesses and disabilities. Do you, as well, find it helpful for able-bodied people to have an understanding of spoon theory, particularly as it relates to your illness? If you don’t find it helpful in your case, why not? I know that not all illnesses are the same, so I’m interested in hearing from people who have a variety of illnesses, whether it relates to physical health, mental health, or both.

[1] In this piece, Miserandino also explains how spoon theory works: https://cdn.totalcomputersusa.com/butyoudontlooksick.com/uploads/2010/02/BYDLS-TheSpoonTheory.pdf